A story has no beginning or end; arbitrarily one chooses that moment of experience from which to look back or from which to look ahead.
- G. Greene
Just going to warn
you again, the husband has taken over this blog update. Also to mention, the
quote above wasn't from a novel that I've read over the past two weeks, just
thought it fit as most stories are generally related to one's life experience
and how that experience changes one's life - you are the only one who truly has
that choice. As you all are very much aware of what's been happening with our
Sweet Caroline over the past week(s), I feel at will that some, certain things
should not go unsaid/unknown... here we go.
Going back even before the original
blog post, even before Caroline was a thought in any of our minds, there was
something within Julie that I knew was there from the moment I met her. I've
been fortunate enough to be with and have someone who has the biggest heart I
know. Maybe it's the nine month bond that one has with their child prior to
birth is something that no one can ever take away from them, or understand.
Trying to comprehend someone else's experience is impossible and I for one am
the worst at it. But, the one thing I do understand is that Caroline is
everything to Julie. We've been sitting by her bedside for over two weeks now,
every day, typically at least ten hours a day. All of the doctors know us, the
nurses know us, the janitorial staff even knows us, and the entire neurosurgery
department definitely knows us. It has gotten to the point where that's all any
of us actually knows. Caroline has been a mystery for everyone within the NICU.
Julie and I have officially run out of things to talk about, unless it regards
Caroline, which is acceptable, but conversations are almost always questions
about how the day went (IE: what changed, what symptoms are there, why this,
why that, etc.). In the meantime, a flood of emotions have been building for
the past few days, especially with the recent set backs earlier this week. We
finally had a bit of a breakdown going to lunch one day this week and it wasn't
about having to go to Chipotle for the fifth (or maybe sixth) time in the last
two weeks. Everything just seemed to get serious real quick - almost surreal.
And it may sound selfish, because it is, but constantly being around other
newborns in the NICU that are crying, burping, progressing... it makes it so
difficult for us to sit and wish we were on their end... It's an unsettling
feeling like we haven't done enough for Caroline to be healthy enough like the
other babies around her. Even with the continued thoughts, prayers, and support
of everything - it is just simply, exhausting.
And
it all kinda fell in place when seeing both of our moms this week. By them
seeing us go through what we're going through and not having any answers of
their own, the ones who raised us and practically had an answer for anything
and everything while growing up, it just doesn't make sense. Granted they
aren't Neonatologists or Neurosurgeons that have infinite knowledge of brain
function or operating on the brain - they are experts on comforting and
protecting their own. A mother's love is stronger than any medicine Caroline
has had yet. Having and expressing that kind of love for your child is the most
important thing you can do to help in almost any circumstance. Julie and I are
so fortunate to have felt that love before now, it allows us to try and replicate
it for Caroline.
Just
watching Julie care and love Caroline the way she does is indescribable. When
not able to hold her, Julie and Caroline look at each other like they both know
exactly what they both are thinking. When holding her, neither want to let go
of the other. Even when Julie walks into the room and she responds to a nurse
or doctor, Caroline knows her voice and almost instinctively knows she's by her
side by opening her eyes looking for her. Any sign of comfort for either of one
them is all they want, it's all I want. And that's what makes all of this so
special - we're creating an experience that will never be forgotten or lost.
This feeling is something that can never be known unless you're the one going
through it yourself. Julie is an amazing wife and an even more amazing mother.
Just me being near both of them at this time, makes my heart complete and would
feel lost without them.
To finish this post, as I have been working off and on on it for three days now, I just wanted to share some more quotes that I feel are so true when talking about this rare love between a mother and daughter..
--
A mother is the truest friend we have, when trials heavy and sudden fall upon
us; when adversity takes the place of prosperity; when friends desert us; when
trouble thickens around us, still will she cling to us, and endeavor by her
kind precepts and counsels to dissipate the clouds of darkness, and cause peace
to return to our hearts. -Washington Irving
-- Mom, I cannot thank you enough for what you have done me. You were always there when I needed you the most.
-- A mother’s arms are more comforting than anyone else’s. -Princess Diana
-- When you are looking at your mother, you are looking at the purest love you will ever know. -Charley Benetto
-- To the world, you are a mother. To a family, you are the world.
Thank
you to all of you moms out there!!
Jeremy
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