As the original post mentioned Julie and I have had quite the roller coaster of events and emotions over the past few weeks. We are forever grateful for all of the kind words, thoughts, & prayers that have come our way since. It has been a bit overwhelming (at times) to hear some of the things said and we truly are appreciative of everything.
We've been together for what seems like forever - yet, not long enough to know what's going to come next which makes "us" work. We have been and will always be a great team which makes me believe whatever stands in our way, we will make the best of everything. I think our families should get a pat on the back as they have made us who we are today. They have always turned nothing into something which is exactly what we are going to do.
I think a lot of people feel saddened from the recent diagnosis of our sweet Caroline. Yet, the only depressing thing that I see is that she could be one day singing that (much despised Neil Diamond) song at a Boston Red Sox game, as a fan. But we all know that won't happen - I promise.
The last two appointments we've attended, we were told there were issues. A possible clubbed foot, semi-odd shape to the head (hereditary of me?), swelling in the lower portion of the spine, and even the growth was smaller than usual. All common characteristics of Spina Bifida. Then we hear - but it's not 100% clear as it's difficult to get a great image on the ultrasounds. Okay, so we're back to square one - as if we were waking up to a blue sky, birds chirping, and a subtle coffee aroma in the air. Then hear the forecast for fifty percent chance of rain. So do you prepare yourself and bring an umbrella for the day? Or just call it a day and give up? We aren't the type to give up. We're not even going to bring an umbrella because that's wishful thinking of a possibility of rain.
The news is only discomforting to those who are unwilling to accept something different. It is something different, even unexpected (my opinion), but it is what it is and there is no change that can be made now besides making it work. Something that has made Julie and I make it work and think beyond the diagnosis is the blog (http://www.whatdoyoudodear.com) referenced in the previous post. I will never forget coming back from UVA last week and reading one about her weird child's name - Simeon. Not Simon. SIM-e-un. Apparently a nurse couldn't fatham the name and gave up and started calling him Cinnamon; which led her, the blogger, to say something about others thinking she had an orange tabby cat in her baby carrier. Not sure what may have triggered it but it was solid five minute (much needed) laugh. I could hardly even read the blog aloud to Julie with the tears in my eyes. It felt like it was truly sinking in at that moment. It was just a long day of not knowing whether it was going to rain or stay sunny.
Ironically, after the appointments that day in Charlottesville, we decided to sit outside and have lunch - where it began to rain. Like I had mentioned earlier, we didn't bring the umbrella, we adapted and stayed dry - making the best of everything around us.
Ironically, after the appointments that day in Charlottesville, we decided to sit outside and have lunch - where it began to rain. Like I had mentioned earlier, we didn't bring the umbrella, we adapted and stayed dry - making the best of everything around us.
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